Washington, D.C. - Today, Congressman Michael C. Burgess, M.D. (R-TX), Chairman of the House Rules Committee, Congressman Danny K. Davis (D-IL) and Congresswoman Barbara Lee (D-CA) re-introduced a resolution to designate June 19, 2024 as "World Sickle Cell Awareness Day". This resolution will increase awareness about sickle cell disease and encourage further research into early detection and treatments.

Senators Cory Booker (D-NJ), Sherrod Brown (D-OH), and Chris Van Hollen (D-MD) introduced companion legislation in the Senate. 

“Sickle cell disease is a silent killer in America, and its impact has been overlooked for far too long," said Chairman Burgess. "Throughout my thirty years as a practicing physician, I have witnessed firsthand the lack of awareness and research dedicated to finding cures and treatments for this devastating illness. I am grateful to join my fellow members in designating June 19th as World Sickle Cell Awareness Day. It’s crucial Americans across our nation and the world are knowledgeable of the sickle cell disease to prevent further loss of life.”

"As we commemorate World Sickle Cell Awareness Day, it is crucial that we come together across party lines to support those affected by this disease. Our bipartisan resolution reflects our collective commitment to raising awareness, advancing research, and improving the lives of individuals with sickle cell disease. By working together, we can make significant strides towards a future where no one has to suffer from the burdens of this condition," said Congressman Davis.

"Sickle Cell Disease is our nation’s most commonly inherited blood disorder, affecting an estimated 100,000 Americans—with a disproportionate number being people of African descent,” said Congresswoman Lee. “Now more than ever, we need to invest in improving awareness, detection, and treatment for this deadly disease. I'm proud to join my colleagues in recognizing June 19th as World Sickle Cell Awareness Day and encouraging greater dialogue and awareness around Sickle Cell."

Background:

Sickle Cell Disease (SCD) is a genetic condition that contorts red blood cells into a “C” or sickle shape, affecting millions of civilians worldwide.

Approximately 100,000 individuals have SCD in the United States, which impacts minority communities with nearly 1 in 365 African American and 1 in every 16,300 Hispanic American children born with the disease. 

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